Welcome to the Australian Leukodystrophy Support Group.
Here you can find out: who we are, what we can do for
you, and how you can help ALDS help others.
We hope that our website answers some questions.
If you want to know more about the ALDS than what you can read from our
website, please - contact
us.
The ALDS plays an important role in supporting those affected by Leukodystrophy which is a group of rare genetic disorders that affect the central nervous system. In most instances, these disorders are progressive and symptoms often include loss of muscle tone, blindness and other debilitating factors. Unfortunately at this stage there is no cure for this cruel genetic condition, although research into Leukodystrophy continues.
To donate to the ALDS and show your support for our work and the many ways in which we assist our families please click on the Donate Now button to the left. All donations of $2.00 or over, are Tax Deductible and please check with your Employer for Salary Sacrifice.
ALDS celebrated their 17th Anniversary on the 17th August 2009. Sr. Julie Thomas launched this support group 17 years ago and on that day there was a lot of media coverage both on television and newspapers. We are pleased to announce that this milestone has been acknowledged with an editorial in the Leader Mordialloc/Chelsea local paper.
Please click on our News Tab for more information and also on Upcoming Events and Fundraising.