Financial Support
We know that for families and individuals affected by leukodystrophy it’s not always easy to juggle life, illness, work and finances. ALDS has a small amount of resources set aside to specifically provide financial assistance to families living with a Leukodystrophy when this support is needed.
In recent years, the ALDS has provided financial support to 30 families in need.
We donate money to families for ongoing or one-off costs (such as travel expenses for doctors’ appointments, medications, household bills, medical bills etc). We have received specific grants for special requests in the past for such items as a specialised head rest and have recently assisted with a bathroom renovation to make caring for a child with a Leukodystrophy easier.
The ALDS has also supported 5 people over the years to travel overseas to attend international conferences on leukodystrophy such as the United Leukodystrophy Foundation (ULF) Conference. This is because one of our key aims is to be an information source for those affected by or interested in the range of leukodystrophies. Those who travel share what they have learned when they return to Australia. They also talk to the people they meet overseas about what we are doing and learning in Australia and form future networks to help strengthen our resources and knowledge.