Australian Leukodystrophy Support Group logo

Australian Leukodystrophy Support Group Inc.

Providing assistance and information to those affected by Leukodystrophy

 
 

Information for Families

The Australian Leukodystrophy Support (ALDS) group provides information about:

To assist in keeping up to date with medical information, the ALDS runs a medical seminar series on Leukodystrophy topics of interest to both members and health professionals. These events usually run every two years with the highlight being the keynote address from a respected international specialist in the field.

On the practical side:

At ALDS we recognise that managing a leukodystrophy is not just about the clinical side of things. There are a lot of other considerations ranging from the need for understanding, support, family counselling, financial considerations and many more. Following are links to some sites that may be able to offer you practical information and resources including a link to a Victorian State Government website with valuable information regarding government entitlements. This site also offers information at a federal level.

http://www.dhs.vic.gov.au/concessions/entitlements/view-all

http://raisingchildren.net.au/children_with_disabilities

www.acd.org.au

www.cda.org.au

www.betterhealth.vic.gov.au

http://www.starlight.org.au/

http://www.bearcottage.chw.edu.au/

http://www.makeawish.org.au

http://MLDfoundation.org

 

 

| Privacy Policy | Contact Us | ©2006 Australian Leukodystrophy Support Group Inc. Registered NO: A0031793T