Privacy and ALDS Inc.
The ALDS Privacy Policy
The ALDS supports, endorses and practices all ten National Privacy Principles as detailed in the Information Sheet 1A provided by the Australian Government Office of the Privacy Commissioner. This can be accessed through the following link:
http://www.privacy.gov.au/materials/types/infosheets/view/6583
When a person joins or makes contact with the ALDS, we collect relevant personal details for the purposes of offering support and information about Leukodystrophy. These contact details are added to our secure, restricted access, computer database. We do not share identifying information about members with other parties without permission in writing being obtained.
To complement The ALDS Privacy Policy we provide a support document “What happens to your information” which details how we treat and use the information that is provided to us.
What Happens To Your Information